U.S., April 16 -- ClinicalTrials.gov registry received information related to the study (NCT06927219) titled 'Research Accelerated by You Lupus Registry' on March 12.
Brief Summary: The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is an ongoing, voluntary, longitudinal study gathers data from adults with lupus and legally authorized representatives of children with lupus to better understand diagnosis, treatment, care, and quality of life. Participants provide informed consent and complete electronic surveys every six months. The LFA uses the data to address constituent needs, share clinical research opportunities, and advance lupus research by sharing de-identified data with approved third-party investigato...