Clinical Trial: Quality of Life, Psychological Impact, and Care-related Challenges in Patients Affected by Von Hippel-Lindau Syndrome.

U.S., Dec. 11 -- ClinicalTrials.gov registry received information related to the study (NCT07275099) titled 'Quality of Life, Psychological Impact, and Care-related Challenges in Patients Affected by Von Hippel-Lindau Syndrome.' on Nov. 28.

Brief Summary: This is a single-centre, cross-sectional observational study aiming to assess the psychological burden, quality of life, and perceived barriers to care in patients with von Hippel-Lindau syndrome (VHL). Data will be collected through an anonymous online questionnaire, specifically designed for the study and administered via Google Forms.

Study Start Date: Dec. 01

Study Type: OBSERVATIONAL

Condition: VHL - Von Hippel-Lindau Syndrome

Recruitment Status: NOT_YET_RECRUITING

Sponsor: IRC...