U.S., April 23 -- ClinicalTrials.gov registry received information related to the study (NCT06938542) titled 'Palliative Care Needs of Children With Rare Diseases and Their Families' on April 08.
Brief Summary: The palliative care needs of family caregivers of children with rare diseases and their children are largely unmet, including the need for support to prepare for future medical decision making. This trial will test the FACE-Rare intervention to see if investigators can identify and meet those needs; and if FACE-Rare effects family caregivers' quality of life and child healthcare utilization. Finally, investigators will determine if the intersectionality of child-sex, family-race, Federal poverty level, and social connection influenc...