U.S., Sept. 12 -- ClinicalTrials.gov registry received information related to the study (NCT07168746) titled 'National Cohort of Patients With SITRAME Syndrome' on June 17.
Brief Summary: SITRAME syndrome is a recently described disease. In the absence of epidemiological data on SITRAME syndrome in France, the National Reference Center for Autoinflammatory Diseases proposes coordinating a database to collect both retrospective and prospective cases of this rare disease.
Currently, there are no available data on the epidemiology or treatment of SITRAME syndrome in France or globally. The importance of this research is to provide an overview of demographic, etiological, and disease progression data for patients with SITRAME syndrome in Fran...