U.S., April 4 -- ClinicalTrials.gov registry received information related to the study (NCT06907953) titled 'CZI Rare As One: Co-designing an App and Wearable Based Compass for Rare Diseases' on Jan. 31.
Brief Summary: The CZI Rare As One study is a Chan Zuckerberg Initiative funded study that aims to co-design and pilot test unique symptom tracking and transmitting apps across 5 different sub-arms that includes individuals with Long COVID, Pancreatitis, Sarcoidosis, Vasolin-Containing Protein (VCP) disease and Primary Ciliary disease (PCD). This study aims to use multimodal digital health tools to enable patients to self-monitor their symptoms in passive and active ways.
Study Start Date: Feb. 06
Study Type: OBSERVATIONAL
Condition:
P...