NATIONAL INSTITUTES OF HEALTH ISSUES NOTICE: NIH CONTROLLED-ACCESS DATA POLICY AND PROPOSED REVISIONS TO NIH GENOMIC DATA SHARING POLICY

WASHINGTON, Dec. 18 -- National Institutes of Health has issued a notice called: NIH Controlled-Access Data Policy and Proposed Revisions to NIH Genomic Data Sharing Policy.

The notice was published in the Federal Register on Dec. 18 by Matthew Memoli, Principal Deputy Director, National Institutes of Health.

Summary: The National Institutes of Health (NIH) is requesting public input on its proposal to establish harmonized and transparent policy requirements for protecting human participant research data. Specifically, NIH proposes (1) establishing policy requirements for which data should be controlled-access under NIH data sharing policies, and (2) revising the NIH Genomic Data Sharing Policy to simplify and harmonize requirements.

For...