U.S., Jan. 3 -- ClinicalTrials.gov registry received information related to the study (NCT07314736) titled 'Stakeholders of Rare Diseases Informing Values In Neuroethics' on Dec. 16, 2025.
Brief Summary: The purpose of this research study is to learn more about the perspectives of key stakeholders-patients, families, healthcare providers, and researchers-on the ethical challenges of small-scale, personalized treatment trials for rare neurological diseases (RND).
Study Start Date: Jan., 2026
Study Type: OBSERVATIONAL
Condition:
Rare Disorder
Disorder, Neurologic
Recruitment Status: NOT_YET_RECRUITING
Sponsor: St. Jude Children's Research Hospital
Disclaimer: Curated by HT Syndication....