U.S., Feb. 14 -- ClinicalTrials.gov registry received information related to the study (NCT07409142) titled 'BetterLife FSHD: A Patient-driven Health and Research Platform' on March 24, 2025.
Brief Summary: BetterLife FSHD is a platform built to support people living with FSHD. It connects patients with personalized resources, tools, and research opportunities that match their health experiences and needs. At the same time, BetterLife collects secure health and experience data from patients to support research. This data is shared with researchers to help better understand FSHD and work toward improved care, treatments, and outcomes for the community.
Learn more and enroll at: www.BetterLifeFSHD.org
Study Start Date: Aug. 02, 2024
Study...