Raj HC expands treatment ambit under CM scheme
JODHPUR, Dec. 1 -- Rajasthan high court, while giving relief to patients of muscular dystrophy and other rare diseases, directed that the benefits of the Mukhyamantri Ayushman Bal Sambal Yojana, 2024 be extended to patients of all ages till further orders. Its benefits are currently available only to patients below 18 years of age.
Senior advocate Sachin Acharya, on behalf of the Swavalamban Foundation, raised the issue of lack of diagnosis, treatment and rehabilitation support for patients of muscular dystrophy before the division bench of justices Pushpendra Singh Bhati and Anuroop Singhi on Friday.
He added that only AIIMS in Rajasthan has a Centre of Excellence, making it difficult for patients from remote areas to travel for treatment. Acharya said even under the CM's Ayushman Bal Sambal Scheme, only 63 listed rare diseases are covered, and there is no provision for treatment of other rare diseases such as GNE Myopathy, Becker MD and Limb Girdle MD. He added the worrying aspect is that the CM Ayushman Bal Sambal Scheme only provides treatment for patients under 18.
Addl advocate general NS Rajpurohit, appearing for the State, said this is a progressive disease and after 18 years, chances of survival are minimal; therefore, the policy is restricted to patients up to 18 years of age....
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