Jodhpur, July 16 -- The National Human Rights Commission (NHRC) has pulled up the Union ministry of health and family welfare for its continued inaction on the issue of including GNE Myopathy - a progressive and debilitating genetic disorder - under the National Policy for Rare Diseases. The commission warned that it may invoke its coercive powers under Section 13 of the Protection of Human Rights Act, 1993, if the ministry fails to submit an action taken report within four weeks. In a communication sent to the ministry on Monday, the NHRC noted that despite directions issued on May 31, 2024, and April 29, 2025, the ministry has neither submitted the report nor communicated any updates to the commission. The case stems from a complaint filed by Dr Vaibhav Bhandari, a resident of Pali, who alleged that individuals suffering from GNE Myopathy are being unjustly excluded from the benefits provided under the national rare disease framework. According to him, this exclusion denies patients crucial support such as import duty exemptions on life-saving medicines and assistive devices, access to state healthcare schemes, and financial assistance for treatment. GNE myopathy is a rare autosomal recessive muscle disease characterized by progressive skeletal muscle atrophy....