Tokyo, Sept. 16 -- UMIN Clinical Trials Registry (UMIN-CTR) received information related to the study (UMIN000059079) titled 'The Burden on Daily Life and Quality of Life for Patients with Mucopolysaccharidosis: An Interview Research' on Sept. 16.
Study Type:
Observational
Primary Sponsor:
Institute - Kansai Medical University
Condition:
Condition - Mucopolysaccharidosis
Classification by malignancy - Others
Genomic information - NO
Objective:
Narrative objectives1 - To clarify the daily burdens and actual state of quality of life experienced by patients with mucopolysaccharidosis and their families.
Basic objectives2 - Others
Eligibility:
Age-lower limit - 16
years-old
<=
Age-upper limit - Not applicable
Gender - Male and Female
Key...