Clinical Trial: Evaluate the Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

U.S., Nov. 1 -- ClinicalTrials.gov registry received information related to the study (NCT07223489) titled 'Evaluate the Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System' on Oct. 29.

Brief Summary: Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.

Study Start Date: Oct. 10

Study Type: OBSERVATIONAL

Condition: Spinal Muscular Atrophy (SMA)

Intervention: BEHAVIORAL: Telephone Interview

Telephone interviews to gather qualitative data on SMA patients' diagnostic journey, access to treatment and barriers encountered, understanding of their disease, and qua...